Retinitis pigmentosa

Retinitis Pigmentosa Awareness Month

It feels weird to acknowledge this month because my RP is progressing slowly. I can see much better than those who are in the later stages of the disorder, and I only have one or two truly bad eye days a month. I’m incredibly thankful for that and thank God for it often.

Even though I don’t currently struggle with extreme vision loss, plenty of people are dealing with the effects of RP every day. It’s a scary disorder, knowing that more than likely you will lose most of your vision but not knowing when. Accepting it as the new normal can be difficult as well.

I know my future with RP is in God’s hands, though, and that truth keeps me going on the harder days.

God may have wrecked the story I had planned for my life, but I know the story He is writing will be a better one, and I’m excited to see it unfold.

If you want to learn more about the journey that I and many others are traveling down, here are some helpful links.